About our cause

Canadian-Thyroid-Patients-HEART-GREY-5002019: Our petition

On January 28, 2019 our petition will be read in the House of Commons by MP Diane Finley.

Here is the full text of our petition:

https://petitions.ourcommons.ca/en/Petition/Details?Petition=e-1819 

It is also duplicated on this website, on our Petition page.

Here is MP Diane Finley’s website’s announcement for our petition.

Petition process

Between August 27 and December 25, 2018, we collected e-signatures on the Government of Canada’s official website.

Within only two days, we met the minimum number of signatures (500) needed to bring it to the attention of Parliament.

By December 25, 2018, the deadline, we reached 5,681 e-signatures. See our announcement.

On January 28, 2019, MP Diane Finley presented our petition to parliament. See our announcement and response.

We are currently waiting to hear the government’s response.

What we believe and why

At this time, we are focusing our campaign on improvements to lifelong therapy for hypothyroidism.

We chose hypothyroid therapy because of the suffering many thyroid patients face due to incomplete and poorly interpreted lab tests, poor access to T3-based thyroid hormone medications, and widespread misunderstanding of how to manage hypothyroidism to optimize therapy for the patient’s quality of life.

We are including ALL thyroid patients because no matter what the cause of thyroid disease, almost all of us end up hypothyroid and on hormone replacement. This cause benefits all patients with

  • Hashimoto’s thyroiditis and Atrophic thyroiditis
  • Thyroid Cancer after a thyroidectomy
  • Graves’ hyperthyroidism after RAI or thyroidectomy
  • Those who have had surgery for growths or nodules on the thyroid gland
  • Post-partum hypothyroidism

We know we can’t represent ALL Canadian thyroid patients and every type of thyroid disease. And we can’t “represent,” in the sense of speaking for, those who disagree with us or those who really don’t mind the way things are. We are simply a bunch of patients leading a campaign for what we see would offer more options for long-term treatment for hypothyroidism and better diagnosis and monitoring for all patients.

Please see our Campaign Statement index page.

When and how we started

This is a grassroots patients’ campaign that was spearheaded by a small group of active members in a support group for Canadian thyroid patients in June, 2018.

Some of us have been driven to do a lot of research because we encountered unexpected challenges in our own thyroid therapy. As we shared knowledge with each other, our research deepened. We also broadened our outlook as we learned more about the struggles many other patients were facing across this country.

Then in 2018, just as we had finished dealing with one thyroid medication shortage, another one was announced for a different thyroid medication. We were alarmed and felt we had to do something about it. That was the catalyst to get us thinking about doing more than just addressing a drug shortage, and possibly improving thyroid patients’ health in larger and more long-lasting ways.

Who are we?

Among the patients who spearheaded and currently co-lead the campaign, many of us desire to remain anonymous at this time. Some of us do not want the stress and labor of being in the public eye as leaders of the campaign. Some are still experiencing hypothyroid symptoms such as fatigue and brain fog on their journey toward optimal therapy. Some among us are benefiting from thyroid hormone therapies that are quite controversial in current practice, and we wish to protect our treasured doctors from the harsh criticism of their peers that could cause harm to their career, and by extension, harm to all their thyroid patients.

Our movement is still in its swaddling clothes, not yet ready to be an organization… just a website for now.

If / when we become an official organization with named public leaders, we will post our organization information and our executives’ names and profiles.

We are building, and we need you.

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